EEN Patient Resources
Diet-Specific Informational Sources
Websites, Support Groups, and Books dedicated to Nutritional Therapy
Websites
NiMBAL
NiMBAL (Nutrition in Immune Balance) defines its mission as "Helping patients, families, and healthcare providers integrate dietary therapy as treatment for Inflammatory Bowel Disease." NiMBAL is founded by David L. Suskind, MD, of Seattle Children’s Hospital Division of Gastroenterology, and Professor of Pediatrics at the University of Washington School of Medicine. While NiMBAL discusses the specifics of SCD and EEN, much of the content is relevant to all types of nutritional therapy and is a valuable resource regardless of diet of choice. The website covers a wide array of general nutritional therapy topics including basic IBD information, healthy eating guidelines, food philosophies, how to determine when nutritional therapy is right for you, managing stress, guidelines for followups with the medical team, meal planning, holidays and events, eating outside the house, problems related to diet, and kitchen/food/safety tips.
NiMBAL Highlights:
NiMBAL: Exclusive Enteral Nutrition (EEN): This page details advice on implementing EEN and for transitioning from EEN to pharmaceutical therapy and/or SCD.
Professor Nimbal Comic: This comic book explains IBD, pharmaceutical and nutritional therapies, and the microbiome to kids via an entertaining comic adventure that is free to download. Hard copies can also be purchased.
North American Society For Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN) website for kids with GI issues.
NASPGHAN: Help & Hope for Children with Digestive Disorders Highlights:
NASPGHAN: Enteral Nutrition Therapy: Downloadable/printable PDF with an overview of EEN.
NASPGHAN: IBD Resources: Audio Podcast Series: Three podcast episodes hosted by Lindsey Albenberg, DO, with dietitians Kim Braly and Nyla Williamson on Nutrition, EEN, and SCD
Blog focusing on nutritional therapy, including but not limited to teen Crohn's, SCD, and beyond. While SCD is specifically mentioned, most of the posts apply to all types of nutritional therapy.
Gut Harmony Highlights:
Gut Harmony: Remission without Steroids – Liquid Diets and EEN: Information about using EEN to get into remission.
Gut Harmony: Cooking Together for Wellness – Chefs, Doctors, and Young Patients: An example of a cooking program for patients on a therapeutic diet.
Excerpt From Website: Nutrition Advice for the IBD Community: Medically curated information on how to live your best life with inflammatory bowel disease through diet and better understanding of your treatment options.
Nutrition 4 IBD Highlights:
Symptom Diary: Instructions for and an example of a Symptom Diary for tracking IBD symptoms
Food Log: Instructions for keeping a food log with examples.
The Combined Approach for IBD Treatment: Treatment of IBD via a combined approach: nutrition, emotional support, medications, and surgery.
Top 5 Tricks for Managing Nutrition During a Flare: How to use nutrition to manage a flare
Learn More: Presentations by Experts and Other Resources
Presentations
Listen to the Experts Share their Wisdom.
Amy M. Donegan, CPNP-PC
Nutrition Therapy: The Most Effective Therapy We (Almost) Never Use
In this video, Amy Donegan, CPNP-PC, discusses misconception of exclusive enteral nutrition therapy in the pediatric Crohn disease population.
Amy M. Donegan, CPNP-PC
In this presentation from the Nursing and Advanced Practice Track at the 2018 Advances in Inflammatory Bowel Diseases, Amy N. Donegan discusses nutrition therapy for the treatment of patients with inflammatory bowel disease.
Amy M. Donegan, CPNP-PC
Putting out the Fire with EEN: Anti-inflammatory Effects of Nutritional Therapy in Crohn's Disease
In this video, Amy Donegan, CPNP-PC, discusses exclusive enteral nutrition therapy and whether it is used enough in the pediatric Crohn disease population.
Andrew S. Day, MB, ChB, MD, FRACP, AGAF
Arie Levine, MD
Exclusive Enteral Nutrition and the Specific Carbohydrate Diet (SCD)
Presentation starts in Hebrew, but switches to English at about the 1 minute mark.
Dale Young Lee, MD, MSCE
Dr. Dale Lee, Director of the Seattle Children's Celiac Program, discusses Exclusive Enteral Nutrition and the Specific Carbohydrate Diet (SCD) at Seattle Children's. NTforIBD comment: Even though the title of the presentation refers to SCD and EEN, Dr Lee also discusses the Crohn's Disease Exclusion Diet (CDED), the Semi-Vegetarian Diet (SVD), and CD-TREAT, along with homemade EEN smoothies. In the Q&A at the end, he discusses different ways to transition from EEN to a therapeutic diet.
David L. Suskind, MD
In this presentation from the Pediatric Track at the 2017 Advances in Inflammatory Bowel Diseases conference, Dr. David Suskind discusses the latest advances in the use of nutrition for therapy in pediatric Crohn's disease.
David L. Suskind, MD
Fecal Microbial Transformation: Diet as Therapy in IBD
Dr. David Suskind researches the specific carbohydrate diet, a low-side effect IBD treatment that has the potential to normalize labs, transform the fecal microbiome and put patients into clinical remission. Our Rainin IBD website showcases our research grantees and the progress they are making.
David L. Suskind, MD
Dr. David Suskind, discusses Exclusive Enteral Nutrition and the Specific Carbohydrate Diet (SCD) at Seattle Children's.
Lindsey Albenberg, DO; Nyla Williamson
Can Nutritional Therapy be Used on a Practical Basis for Maintenance?
Lindsey Albenberg, DO, and dietitian Nyla Williamson discuss the use of EEN and PEN for pediatric IBD patients.
Robert N. Baldassano, MD
In this video, Dr. Robert N. Baldassano presents: "Can Nutritional Therapy be Used on a Practical Basis for Maintenance?"
